Knowledge, attitudes, and barriers to carrier screening for the Ashkenazi Jewish panel: a Florida experience
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ORIGINAL ARTICLE
Knowledge, attitudes, and barriers to carrier screening for the Ashkenazi Jewish panel: a Florida experience Education and Barriers assessment for Jewish Genetic Diseases Jessica R. L. Warsch & Sean Warsch & Elizabeth Herman & Lauren Zakarin & Adele Schneider & Jodi Hoffman & Deborah Wasserman & Deborah Barbouth
Received: 12 July 2013 / Accepted: 11 December 2013 # Springer-Verlag Berlin Heidelberg 2014
Abstract The knowledge, attitudes, and barriers to Jewish genetic diseases (JGDs) and screening and their relative importance in reproductive decision-making were assessed in a population-based sample of Ashkenazi Jewish young adults in Florida. These adults attended educational screening fairs hosted by The Victor Center for the Prevention of Jewish Genetic Diseases at the University of Miami. Parametric and nonparametric tests were used as appropriate to analyze data from a single group pretest/posttest design. Four hundred twelve individuals (mean age=24.9; 54.7 % female, 45.3 % male) completed the questionnaires. Participants' level of knowledge increased from pre- to post-intervention (81.4 vs. 91.0 %; p
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