Evaluating methods for engaging children in healthcare technology design
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ORIGINAL PAPER
Evaluating methods for engaging children in healthcare technology design Matthew J. Allsop & Raymond J. Holt
Received: 20 October 2012 / Accepted: 25 June 2013 # IUPESM and Springer-Verlag Berlin Heidelberg 2013
Abstract Examples of user involvement can be found throughout healthcare literature. This extends to the design and development of healthcare technology where the involvement of users has been found to positively impact the quality and safety of products. However, there is currently little known about which methods are the most appropriate for involving children in technology development. The research applied and developed a framework to guide the use of methods in the design and development of healthcare technology for upper limb rehabilitation in children with cerebral palsy. Utilising an assessment framework to explore the suitability of four interview methods for involving children in the design and development of healthcare technology, research was carried out in primary schools in the United Kingdom. The research team i) used the assessment framework to guide the collection of information for comparing methods for involving children; ii) considered additional criteria for inclusion in the framework; and iii) gathered observations and data to comment on the criteria in relation to the four interview methods. Children were able to participate in all four interview methods, although further consideration is needed to identify how children with disabilities can be involved in design activities forming part of interview methods. Differences were found between the methods relating to their robustness, reliability, validity, efficiency, enjoyment and cost. The involvement of participants with a disability highlighted the need to develop new methods that support their inclusion in healthcare technology design work. M. J. Allsop (*) Leeds Institute of Health Sciences, University of Leeds, 101 Clarendon Road, Leeds LS2 9LJ, UK e-mail: [email protected] R. J. Holt Institute of Engineering Systems and Design, School of Mechanical Engineering, University of Leeds, Leeds LS2 9JT, UK
The assessment framework applied in this research was useful to inform the comparison of methods and represents a step towards a more unified approach to understanding how best to capture the perspectives of children to develop technology that meets their needs. Keywords User involvement . Children . Disability . Technology design . Healthcare . Assistive technology
1 Introduction In the United Kingdom (UK), the Government has committed to creating a norm of shared decision making in healthcare between patients and clinicians, and the emergence of new commissioning boards pledge to champion patient and carer involvement [1]. The justification and support behind user involvement (UI) and activities relating to patient and public involvement (PPI) is now well established in the healthcare literature [2], with many examples available from service planning and development and research activity within the National He
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