Lessons Learned to Building Stakeholder Engagement during the Initial Stages of Pragmatic Research Development and Imple
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Lessons Learned to Building Stakeholder Engagement during the Initial Stages of Pragmatic Research Development and Implementation Jennifer Combs 1,2 & Drew Barzman 1 & Rosalie Hemphill 1 Michael Sorter 1 & Reine Decker 1
1
& Alexander Osborn &
Accepted: 17 September 2020/ # Springer Science+Business Media, LLC, part of Springer Nature 2020
Abstract
Research does not occur in a vacuum. Effective stakeholder engagement occurs on several levels, including outside influence and cooperation inside the institution. Little guidance around designing and implementing pragmatic mental health research exists. The following paper outlines lessons learned during the initial stages of research design and implementation for a project focused on mental health treatment outcomes. Keywords Pragmatic research . Study implementation . Stakeholder engagement . Adolescent mental health . Adolescent suicide
Introduction With the ever-changing landscape of mental health treatment and intervention, the need for research is needed now more than ever. Just like research in other fields of medicine, mental health research has its own set of challenges and obstacles. However, a clear lesson runs true through all research modalities: the need for partnerships. Pragmatic research does not occur in a in a sterile, controlled environment. It requires the partnership of patients, caregivers, healthcare providers, advocacy groups and academic stakeholders. Stakeholder engagement is an important component of pragmatic trials seeking to improve mental health care in realworld settings [8]. Emerging research is indicating the importance of including stakeholders in project design [3, 9] and throughout the length of the project [1]. Understanding how to involve stakeholders and balancing the perspectives, agendas and goals of all parties can be a
* Jennifer Combs [email protected]
1
Cincinnati Children’s Hospital and Medical Center, Cincinnati, OH, USA
2
Division of Child and Adolescent Psychiatry, Cincinnati Children’s, 3333 Burnet Avenue, MLC 9009, Cincinnati, OH 45229, USA
Psychiatric Quarterly
challenging experience. Through our initial stages of a project funded by the Patient-Centered Outcomes Research Institute, we have gained valuable insight into conducting stakeholder centered pragmatic research. These lessons include the importance of clearly defined goals and purpose of the research, respecting others’ influence and perspective, building effective and consistent communication, and allowing for change and adaptation.
Learning Process The lessons outlined in this paper were developed over the early stage of project development and implementation on a research project funded by the Patient-Centered Outcomes Research Institution. The study team is comprised of psychiatrists, psychologist, social workers, mental health and research professionals, emergency room professionals, and statisticians that brought years of research experience. Although the team members have spent years on collaboration on other projects, recent work
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