Psychometric Evaluation of a Consumer-Developed Family-Centered Care Assessment Tool
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METHODOLOGICAL NOTES
Psychometric Evaluation of a Consumer-Developed Family-Centered Care Assessment Tool Nora Wells • Suzanne Bronheim • Stephen Zyzanski Clarissa Hoover
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The Author(s) 2015. This article is published with open access at Springerlink.com
Abstract The objective of this study was to create a psychometrically sound measure of family-centered care, the Family-Centered Care Assessment (FCCA), developed through a process led by families in collaboration with maternal and child health leaders. The items for the FCCA scale were initially developed by families of children and youth with special needs in partnership with pediatric providers and researchers. Using an Institutional Review Board-approved research protocol, the questions were revised based on input from focus groups of diverse parents in three states. Parental responses (N = 790) to the revised 59-item survey were collected online from families in 49 states. Item distributions uniformly showed excellent spread. A principal axes factor analysis confirmed the existence of a single factor. Rasch modeling item analyses identified a reduced subset of 24 items that demonstrated excellent psychometric properties. All items met the criteria for a linear Rasch scale. Empirical evidence in support of the construct validity of the 24-item measure was derived: all items had a positive and substantial item–total correlation; person alpha scale reliability was [0.80 and the item reliability was [0.90; both separation indices were [2.0; infit and outfit statistics were within 0.5–1.5; and item difficulties ranged between -2 and ?2 logits. Strong rank-ordered associations and large effect sizes were observed for six indicators of quality of care. This study’s
family-led process produced a tool, the FCCA, to measure families’ experience of care with excellent psychometric properties. Keywords Family-centered care Quality improvement Patient engagement Patient satisfaction Patient experience
Introduction The concept of family-centered care has been central in health services for the estimated 14.6 million [1] children and youth with special health care needs (CYSHCN) and their families for over 20 years, guided by the legislative mandate of the 1989 Omnibus Budget Reconciliation Act and the federal Maternal and Child Health Bureau (MCHB) [2]. Family-centered care is a way of providing services that assures the health and well-being of children and their families through respectful family–professional partnerships. It honors the strengths, cultures, traditions, and expertise that families and professionals bring to this relationship. Family-centered care is a standard of practice which results in high quality services [3]. Partnerships between families and professionals are built on the following principles [4]: •
N. Wells (&) C. Hoover Family Voices, Inc., Albuquerque, NM, USA e-mail: [email protected] S. Bronheim Georgetown University, Washington, DC, USA S. Zyzanski Case Western Reserve University, Cleveland, OH, USA
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Families
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