Rare Diseases in the Age of Health 2.0
This text focuses on various factors associated with orphan diseases and the influence and role of health information technologies. Orphan diseases have not been adopted by the pharmaceutical industry because they provide little financial incentive to tre
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Rajeev K. Bali Lodewijk Bos Michael Christopher Gibbons Simon R. Ibell Editors
Rare Diseases in the Age of Health 2.0
Communications in Medical and Care Compunetics Volume 4
Series Editor Lodewijk Bos International Council on Medical and Care Compunetics Utrecht, The Netherlands
For further volumes: http://www.springer.com/series/8754
This series is a publication of the International Council on Medical and Care Compunetics. International Council on Medical and Care Compunetics (ICMCC) is an international foundation operating as the knowledge centre for medical and care compunetics (COMPUting and Networking, its EThICs and Social/societal implications), making information on medicine and care available to patients using compunetics as well as distributing information on the use of compunetics in medicine and care to patients and professionals.
Rajeev K. Bali · Lodewijk Bos Michael Christopher Gibbons · Simon R. Ibell Editors
Rare Diseases in the Age of Health 2.0
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Editors Rajeev K. Bali BIOCORE Coventry University Coventry UK Lodewijk Bos International Council on Medical and Care Compunetics Utrecht The Netherlands
Michael Christopher Gibbons Johns Hopkins Urban Health Institute Baltimore MD USA Simon R. Ibell iBellieve Foundation Toronto Canada
ISSN 2191-3811 ISSN 2191-382X (electronic) ISBN 978-3-642-38642-8 ISBN 978-3-642-38643-5 (eBook) DOI 10.1007/978-3-642-38643-5 Springer Heidelberg New York Dordrecht London
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