Teaching Type 1 Diabetes: Creating Stakeholder Engagement in Biomedical Careers Through Undergraduate Research Curriculu
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SHORT COMMUNICATION
Teaching Type 1 Diabetes: Creating Stakeholder Engagement in Biomedical Careers Through Undergraduate Research Curriculum Ashby F. Walker 1,2 Michael J. Haller 1,6
Mark A. Atkinson 1,3 & Alexandra M. Lee 4 1,6 & Desmond A. Schatz
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Gina Aulisio 1,5
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Todd M. Brusko 1,3
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# International Association of Medical Science Educators 2019
Abstract Undergraduate students living with chronic diseases attending universities where major biomedical research takes place are critical stakeholders in these programs, yet they often remain sequestered from them. A directed research curriculum about Type 1 Diabetes (T1D) was developed to better engage undergraduate students with personal connections to the disease in a large medical university setting world renowned for its research in this area. The course had the following student learning outcomes: (1) gain knowledge of major T1D research programs; (2) exposure to careers in T1D research and clinical care; and (3) recognize bioethical issues in T1D research. Keywords Type 1 diabetes . Directed research . Stakeholder engagement . Patient-centered
Introduction “No matter how complicated the research or how brilliant the researcher, patients and the public always offer unique, invaluable insights. Their advice when designing, implementing and evaluating research invariably makes studies more effective, more credible, and often more cost efficient as well.” Professor Dame Sally Davis, Chief Medical Officer, Foreword in the 2009 Stanley Report
* Ashby F. Walker [email protected] 1
University of Florida Diabetes Institute, University of Florida, PO Box 100309, Gainesville, FL 32610, USA
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Department of Health Services Research, Management and Policy, University of Florida, PO Box 100195, Gainesville, FL 32610, USA
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Department of Pathology, Immunology, and Laboratory Medicine, University of Florida, PO Box 100275, Gainesville, FL 32610, USA
4
Department of Health Outcomes and Biomedical Informatics, University of Florida, PO Box 100177, Gainesville, FL 32610, USA
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College of Public Health and Health Professions, University of Florida, PO Box 100185, Gainesville, FL 32610, USA
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Department of Pediatrics, University of Florida, PO Box 100296, Gainesville, FL 32610, USA
Background The value of patient-centered approaches in clinical care as well as in health outcomes research is widely acknowledged [1–3]. The ethos of stakeholder engagement is foundational to such approaches, and there is growing evidence to suggest that this type of engagement leads to more efficient and meaningful models of care delivery and implementation science [4, 5]. Advocacy for stakeholder engagement in chronic disease management or translational science efforts is rooted in the notion that people who live with a disease hold invaluable expertise and possess unparalleled investment in the outcome of advances in the field [1–3]. However, developing a meaningful model for patient-centered approaches to laboratory or bench science is challenging as these settings are usu
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