The usefulness and validity of English-language videos on YouTube as an educational resource for spondyloarthritis
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ORIGINAL ARTICLE
The usefulness and validity of English-language videos on YouTube as an educational resource for spondyloarthritis Sakktivel Elangovan 1
&
Yu Heng Kwan 1,2,3 & Warren Fong 1,2,3
Received: 6 August 2020 / Revised: 22 August 2020 / Accepted: 27 August 2020 # International League of Associations for Rheumatology (ILAR) 2020
Abstract Background YouTube is a popular online platform where patients often visit for information. However, the validity of the content on spondyloarthritis (SpA) on YouTube is not known. Objectives To evaluate the content, reliability, and quality of the most viewed English-language YouTube videos on SpA. Methods Keywords “spondyloarthritis,” “spondyloarthropathy,” and “ankylosing spondylitis” were searched on YouTube on October 7, 2019. The top 270 videos were screened. Videos were excluded if they were irrelevant, in non-English language, or if they had no audio. Total number of views, duration on YouTube (days), video length, upload date, and number of likes, dislikes, subscribers, and comments were recorded for videos. A modified 5-point DISCERN tool and the 5-point Global Quality Scale (GQS) score were used to assess the reliability and quality of the videos. Results Two hundred videos were included in the final analysis (62% from healthcare professionals, 37% from patients, and 2% from news channels). Useful information, useful patient opinion, misleading patient opinion, and misleading information comprised o60%, 26%, 11%, and 3% of videos respectively. Majority of misleading videos were uploaded by patients (82%). Misleading videos commonly included wrong clinical features and unproven alternative treatments of SpA. Videos by healthcare professionals had more useful information, higher reliability, and GQS scores. Conclusions Majority of YouTube videos have useful information on SpA and are important educational sources to patients. However, rheumatologists should be aware that misleading patient opinions on alternative therapies can contain inaccurate information and should hence actively correct these misinformation during their clinic consults
Key Points • The majority of videos on Spondyloarthritis found on YouTube are deemed useful and are uploaded by healthcare professionals. • The majority of misleading videos were uploaded by patients and the main theme of misinformation was on clinical features and treatment of spondyloarthritis.
Keywords Ankylosing spondylitis . Patient education . Quality . Spondyloarthritis . Social media
Introduction * Sakktivel Elangovan [email protected] 1
Department of Rheumatology and Immunology, Singapore General Hospital, Singapore, Singapore
2
Duke-NUS Medical School, Singapore, Singapore
3
Department of Medicine, Yong Loo Lin School of Medicine, National University of Singapore, Singapore, Singapore
With the advent of the Internet, people can effortlessly obtain healthcare information online. It is essential that a patient is adequately educated and informed about their disease and treatment as this has pr
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