Trends in idiopathic inflammatory myopathies: cross-sectional data from the German National Database
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Rheumatology International https://doi.org/10.1007/s00296-020-04634-0
INTERNATIONAL
OBSERVATIONAL RESEARCH
Trends in idiopathic inflammatory myopathies: cross‑sectional data from the German National Database Katinka Albrecht1 · Dörte Huscher2 · Johanna Callhoff1 · Jutta G. Richter3 · Tobias Alexander4 · Jörg Henes5 · Angela Zink1,4 Received: 18 May 2020 / Accepted: 17 June 2020 © The Author(s) 2020
Abstract Objective To describe trends in outcomes among patients with idiopathic inflammatory myopathies (IIM) over two decades. Methods From 1997 to 2017, a total of 1079 IIM patients were documented in the National Database of the German Collaborative Arthritis Centers. Annual cross-sectional data on treatment, disease activity, patient-reported outcomes, hospitalization and employment were compared across the years. Information on phenotypes, organ manifestations and autoantibodies was collected for a subset to compare the assessment of global health, pain, fatigue and sleeping disorders. Results In 2017, significantly more IIM patients were assessed to be in low disease activity (94%) than in 1997 (59%), p
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