Validation of the Hungarian version of the CarerQol instrument in informal caregivers: results from a cross-sectional su
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Validation of the Hungarian version of the CarerQol instrument in informal caregivers: results from a cross‑sectional survey among the general population in Hungary Petra Baji1 · Werner B. F. Brouwer2,3 · Job van Exel2,3 · Dominik Golicki4 · Valentina Prevolnik Rupel5 · Zsombor Zrubka1,6 · László Gulácsi1,6 · Valentin Brodszky1 · Fanni Rencz1,7 · Márta Péntek1,6 Accepted: 29 September 2020 © The Author(s) 2020
Abstract Purpose The CarerQol instrument has been designed and validated as an instrument able to measure both the positive and the negative impacts of caregiving on the quality of life of informal caregivers (CarerQol-7D), as well as their general happiness (CarerQol-VAS). The aim of this study was to assess the construct validity of the CarerQol in the Hungarian context. Methods The CarerQol was translated into Hungarian. Subsequently, in a cross-sectional online survey, representative for the general Hungarian population (N = 1000), informal caregivers were identified (N = 149, female 51.2%, mean age 53.2). Clinical, convergent and discriminant validity of the CarerQol were evaluated in relation to the caregivers’ and care recipients’ EQ-5D-5L health status, and caregiving situation characteristics. Results Average CarerQol-7D and CarerQol-VAS scores were 76.0 (SD 16.2) and 6.8 (SD 2.3), respectively. CarerQol-7D and CarerQol-VAS scores were significantly correlated with caregiving time (r = − 0.257; − 0.212), caregivers’ EQ-5D-5L scores (r = 0.453; 0.326) and the CarerQol-7D also with care recipients’ EQ-5D-5L scores (r = 0.247). CarerQol-7D scores differed significantly with relevant caregiving characteristics (e.g. nature and severity of care recipients’ health status, sharing household) and both the CarerQol-7D and CarerQol-VAS with the overall care experience. Conclusion Our findings confirmed the validity of the Hungarian language version of the CarerQol and support the crosscultural validity of the instrument. CarerQol-7D scores performed better in distinguishing caregiving situation characteristics than the general happiness measure CarerQol-VAS. Care recipients’ health status was only weakly associated with informal caregivers’ care-related quality of life and happiness. Caregivers’ own health and caregiving circumstances were more strongly associated with these scores. Keywords Informal care · Burden · Validation · CarerQol · EQ-5D-5L
Electronic supplementary material The online version of this article (https://doi.org/10.1007/s11136-020-02662-8) contains supplementary material, which is available to authorized users. * Márta Péntek marta.pentek@uni‑corvinus.hu; pentek.marta@uni‑obuda.hu 1
Department of Health Economics, Corvinus University of Budapest, Fővám tér 8, Budapest 1093, Hungary
2
Erasmus School of Health Policy & Management (ESHPM), Erasmus University Rotterdam, PO Box 1738, 3000 DR Rotterdam, The Netherlands
3
Erasmus School of Economics (ESE), Erasmus University Rotterdam, PO Box 1738, 3000 DR Rotterdam, The Netherlands
4
Department of
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