Evaluation of the experiences of family members whose deceased relative donated tissues at the NHSBT dedicated donation
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Evaluation of the experiences of family members whose deceased relative donated tissues at the NHSBT dedicated donation facility in Speke, Liverpool Tracy Long-Sutehall • Emma Winstanley Anthony J. Clarkson • Magi Sque
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Received: 27 April 2011 / Accepted: 9 July 2011 / Published online: 23 July 2011 Springer Science+Business Media B.V. 2011
Abstract Donation of human tissue for transplant and research has historically been facilitated within the hospital mortuary. In 2006 NHSBT Tissue Services opened the Dedicated Donation Facility [DDF], the first facility in the UK dedicated to the donation of tissues under strictly controlled conditions. Nine family members who had agreed and experienced the transfer of their deceased relative to the DDF for tissue donation participated in a service evaluation applying qualitative data collection methods and framework analysis. The evaluation aimed to: understand the decision-making process of family members who agreed to their deceased relative being moved to the DDR for tissue donation; identify any concerns that family members had; gather the views of family members regarding the ‘service’ provided to T. Long-Sutehall (&) Faculty of Health Sciences, University of Southampton, Southampton SO17 1BJ, UK e-mail: [email protected] E. Winstanley National Referral Centre, NHS Blood and Transplant, Tissue Services, Speke, Liverpool, UK A. J. Clarkson Organ Donation, NHS Blood and Transplant, Bristol, UK M. Sque The Royal Wolverhampton Hospitals NHS Trust, Centre for Health and Social Care Improvement, School of Health and Wellbeing, University of Wolverhampton, Wolverhampton WV10 0QP, UK
them by NHSBT Tissue Services. Family members were unaware of the possibility of tissue donation. The process of reasoning behind both agreeing to tissue donation and movement of the deceased to the DDF by family members was fundamentally, ‘the benefit to others’ that tissue donation would bring, and fulfilling the wishes of the deceased [when known]. Family decision making was facilitated by: (i) a positive rapport with the requester, (ii) satisfaction with the information provided to the family about what would happen, and (iii) trust in that what was being said would happen. Family members were satisfied with the service provided to them by Tissue Services and confident in agreeing to the transfer of their deceased relative to the dedicated facility for tissue donation. Keywords Tissue donation Family members experiences Dedicated facility Service evaluation
Introduction Donation of human tissue for transplant and research has historically been facilitated within the hospital mortuary. In a bid to control the conditions under which tissue for transplantation is donated and in response to European guidance on quality Directive (2004), NHSBT Tissue Services opened a facility dedicated to the donation of tissues under strictly controlled conditions in Speke, Liverpool. The Dedicated
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Donation Facility [DDF] in Speke, Liverpool opened in 2006 and was the first of its kind in th
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