Patient and Public Involvement (PPI) in Health Economics Methodology Research: Reflections and Recommendations
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Patient and Public Involvement (PPI) in Health Economics Methodology Research: Reflections and Recommendations Hareth Al‑Janabi1 · Jenny Coles2 · John Copping2 · Nishit Dhanji1 · Carol McLoughlin1 · Jacky Murphy2 · Jean Nicholls2
© Springer Nature Switzerland AG 2020
Abstract Patient and public involvement (PPI) can be used in methods research, as well as applied research, in health economics. However, methods research goals may seem quite abstract when compared to the lived experiences of lay participants. This article draws on 4 years of PPI in a research project to develop methods for including family carer outcomes in economic evaluation. Key challenges in using PPI for health economics methods research relate to (1) training and preparation, (2) maintaining involvement, and (3) selecting suitable tasks. We suggest three criteria for selecting a research task for PPI input based on task importance, professional researcher skills gap, and potential PPI contribution.
Key Points for Decision‑Makers For patient and public involvement to work in methods research, researchers need to adequately prepare, ensure ongoing engagement from the panel, and select suitable research tasks. A suitable task ought to be central to the research objec‑ tive and in an area where lay participants have additional skills and/or knowledge to the academic research team.
1 PPI and Health Economics Methods Research Health economics research is beginning to benefit from patient and public involvement (PPI) [1–3]. This research can be ‘methodological’ or ‘applied’ in nature, and both forms of research raise important challenges in using PPI. In this article, we reflect on PPI input alongside a health * Hareth Al‑Janabi [email protected] 1
University of Birmingham, Birmingham, UK
Lived Experience Advisory Panel, University of Birmingham, Birmingham, UK
2
economics project to develop methods to include informal (family) carer outcomes in economic evaluation. The article starts with a brief overview of PPI and methods research in health economics. We then describe our research project and experience of using PPI. Drawing on our experience, the remainder of the article discusses issues in PPI in health economics methods research. PPI has grown substantially over the last 2 decades and is increasingly required for health research in the UK [4] and elsewhere [5, 6]. It can be used in various stages of the life cycle of a research project from prioritising research ques‑ tions through to impact evaluation [7]. PPI has been used in various ways in health economics, including in support of priority setting [3], setting the scope of costs and outcomes [2], selecting health states for valuation [1], and identifying approaches to collecting cost and outcome data [2]. It is important to distinguish PPI from qualitative research (an important parallel development in health economics [8]) in the sense that PPI is research done in partnership with the public, rather than using the public as participants. PPI cov‑
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