Pediatrician's Guide to Discussing Research with Patients
With the proliferation of research studies posted online, media outlets scrambling to pick up stories, and individuals posting unverified information via social media, the landscape for parents trying to understand the latest science as it pertains to the
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Christina A. Di Bartolo Maureen K. Braun
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Pediatrician’s Guide to Discussing Research with Patients
Christina A. Di Bartolo · Maureen K. Braun
Pediatrician’s Guide to Discussing Research with Patients
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Christina A. Di Bartolo The Child Study Center NYU Langone Medical Center New York, NY USA
Maureen K. Braun Department of Pediatrics Icahn School of Medicine at Mount Sinai Hospital New York, NY USA
ISBN 978-3-319-49546-0 ISBN 978-3-319-49547-7 (eBook) DOI 10.1007/978-3-319-49547-7 Library of Congress Control Number: 2016959518 © Springer International Publishing AG 2017 This work is subject to copyright. All rights are reserved by the Publisher, whether the whole or part of the material is concerned, specifically the rights of translation, reprinting, reuse of illustrations, recitation, broadcasting, reproduction on microfilms or in any other physical way, and transmission or information storage and retrieval, electronic adaptation, computer software, or by similar or dissimilar methodology now known or hereafter developed. The use of general descriptive names, registered names, trademarks, service marks, etc. in this publication does not imply, even in the absence of a specific statement, that such names are exempt from the relevant protective laws and regulations and therefore free for general use. The publisher, the authors and the editors are safe to assume that the advice and information in this book are believed to be true and accurate at the date of publication. Neither the publisher nor the authors or the editors give a warranty, express or implied, with respect to the material contained herein or for any errors or omissions that may have been made. Printed on acid-free paper This Springer imprint is published by Springer Nature The registered company is Springer International Publishing AG The registered company address is: Gewerbestrasse 11, 6330 Cham, Switzerland
Preface
The past few decades have witnessed a remarkable shift in the doctor–patient relationship. Beginning in the late twentieth century, patients began assuming increasingly active roles in their medical care. While shared decision-making and patient-centered care convey benefits, they are not without challenges. The Internet, with a plethora of easily accessible information, contributes to the wave of patients visiting their physicians with preconceived notions of their diagnosis and preferred treatment course. When patients read accurate information from reputable sources, their increased knowledge and understanding expedites the consultation by reducing the time needed for patient education. However, the poor quality of information available to the lay public causes many patients to become misinformed, confused, and fearful. Physicians, compelled to respond accordingly, are then tasked with correcting misconceptions. Results of research studies, complicated and nuanced by nature, are regularly presented over-broadly or incorrectly on the Internet. Viral Internet content is taken as fact. Basic science research results are
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