Selection of a quality of life instrument for polio survivors in Northwest Nigeria
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(2020) 18:309
REVIEW
Open Access
Selection of a quality of life instrument for polio survivors in Northwest Nigeria Surajo Kamilu Sulaiman1,2* , Heather Michelle Aldersey1, Vincent G. DePaul1 and Bashir Kaka2
Abstract Background: To generate high-quality evidence, contextually relevant outcome measurement instruments are required. Quality of life evaluation among polio survivors typically involves the use of generic instruments, which are developed and validated among a different groups of people. There is no clear evidence whether these instruments are appropriate for the measurement of quality of life among polio survivors in northwest Nigeria. The purpose of this review is to identify and select a pre-existing instrument that is best suited for the measurement of quality of life among polio survivors in northwest Nigeria. Methods: Using the findings of a previous scoping review of the literature and qualitative descriptive study, we screened 11 quality of life instruments that are used in polio literature. We identified and selected the most appropriate instrument, which reflected the perspectives of polio survivors in northwest Nigeria and at the same time exhibited good measurement properties. Results: The Quality of Life Index, World Health Organization Quality of Life Brief, and Comprehensive Quality of Life Scale are consistent with the perspectives of polio survivors in northwest Nigeria and have satisfactory measurement properties. Among these instruments, the Quality of Life Index satisfied most of the screening criteria we employed and is suitable for cross-cultural adaptation in northwest Nigeria. Conclusion: Most instruments that are employed to evaluate the quality of life of polio survivors were not primarily designed as a measure of quality of life. To select the appropriate instrument, there is a need to consider and reflect the perspectives of the individuals, to improve the validity of the measurement. Keywords: Quality of life, Outcome measure, Questionnaire, Psychometric properties, Cultural relevance, Translation, Adaptation
Introduction Paralytic polio is a neuromuscular disorder, which is characterized by acute flaccid paralysis, especially in the upper and lower limb muscles, resulting from the destruction of motor neurons in the brainstem and spinal cord by poliovirus [2, 10]. Evidence has shown that secondary complications in the form of post-polio syndrome and other related neuromuscular impairments * Correspondence: [email protected] 1 School of Rehabilitation Therapy, Queen’s University, Louise D. Acton Building, 31 George Street, Kingston, Ontario K7L 3N6, Canada 2 Department of Physiotherapy, Faculty of Allied Health Sciences, College of Health Sciences, Bayero University, Kano PMB 3011, Nigeria
are common among polio survivors, which could lead to deterioration in health and functional status of the individual [39, 40, 44, 57]. Globally, about 20 million people are living with varying degrees of polio-related disability [25]. Despite the dearth of accurate statistica
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