The development of a new measure of quality of life for young people with diabetes mellitus: the ADDQoL-Teen
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The development of a new measure of quality of life for young people with diabetes mellitus: the ADDQoL-Teen Carolyn V McMillan*1, Rachel J Honeyford1, Jessica Datta2, Nicola JH Madge2 and Clare Bradley1 Address: 1Department of Psychology, Royal Holloway, University of London, Egham, Surrey, TW20 0EX, UK and 2National Children's Bureau, 8 Wakley St, London, EC1V 7QE, UK Email: Carolyn V McMillan* - [email protected]; Rachel J Honeyford - [email protected]; Jessica Datta - [email protected]; Nicola JH Madge - [email protected]; Clare Bradley - [email protected] * Corresponding author
Published: 09 November 2004 Health and Quality of Life Outcomes 2004, 2:61
doi:10.1186/1477-7525-2-61
Received: 09 July 2004 Accepted: 09 November 2004
This article is available from: http://www.hqlo.com/content/2/1/61 © 2004 McMillan et al; licensee BioMed Central Ltd. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/2.0), which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
Abstract Background: This study evaluated the psychometric properties of the ADDQoL-Teen, an innovative individualised, patient-centred questionnaire measuring perceived impact of diabetes mellitus on quality of life (QoL) of teenagers. Respondents rate all 30 life domains for frequency, and personally applicable domains for 'bother'. Two overview items measure present QoL and diabetes-dependent QoL. ADDQoL-Teen design was based on the ADDQoL (for adults with diabetes). Methods: Interviews and discussion groups were conducted with 23 teenagers aged 13–16 years, during work to design the ADDQoL-Teen. The new questionnaire was then completed by 152 young people, (mean age 16.4 ± 2.4 years), attending diabetes clinics at six UK centres. Results: Five domains detracted from the measure's reliability and factor structure, four of which were analysed separately and one deleted. The 25-domain ADDQoL-Teen had high internal consistency reliability [Cronbach's alpha = 0.91, (N = 133)] and could be summed into an overall Average Weighted Impact score. There were two subscales: a 10-item Impact-Self subscale (measuring impact of diabetes and its treatment on the individual) and a 15-item Impact-Other subscale (measuring impact on interactions with others and the external world). Both subscales had good internal consistency reliability, [Cronbach's alpha coefficients of 0.82 (N = 142) and 0.88 (N = 138) respectively]. Domains reported as most severely (and negatively) impacted by diabetes were (mean weighted impact ± SD): lie in bed (-3.68 ± 3.41), interrupting activities (-3.5 ± 3.23), worry about the future (-3.45 ± 3.28), career (-3.43 ± 3.15) and sweets (-3.24 ± 3.24), (maximum range -9 to +3). Analysis of the overview items showed that although 72.5% considered that their present QoL was good or brilliant, 61.8% felt that having diabetes had a negative impact o
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