Trends Over a Decade in NIH Funding for Autism Spectrum Disorder Services Research
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ORIGINAL PAPER
Trends Over a Decade in NIH Funding for Autism Spectrum Disorder Services Research Paige E. Cervantes1 · Maya Matheis2 · Jasper Estabillo3 · Dana E. M. Seag1 · Katherine L. Nelson4 · Robin Peth‑Pierce5 · Kimberly Eaton Hoagwood1 · Sarah McCue Horwitz1 Accepted: 29 September 2020 © Springer Science+Business Media, LLC, part of Springer Nature 2020
Abstract Investments in autism spectrum disorder (ASD) research, guided by the Interagency Autism Coordinating Committee (IACC), have focused disproportionately on etiology over a well-established stakeholder priority area: research to improve accessibility and quality of community-based services. This study analyzed National Institutes of Health ASD services research funding from 2008 to 2018 to examine funding patterns, evaluate the impact of IACC objectives, and identify future directions. Approximately 9% of total funds were allocated to services research. This investment remained relatively stable across time and lacked diversity across domains (e.g., area of focus, ages sampled, implementation strategies used). While advancements were observed, including increased prevalence of projects focused on adult samples and on dissemination/implementation and prevention areas, greater investment in service research is critically needed. Keywords Autism spectrum disorder · ASD services research · Dissemination and implementation · ASD policy · Community Mental Health Services · National Institutes of Health (U.S.) The Centers for Disease Control and Prevention (CDC)’s Autism and Developmental Disabilities Monitoring (ADDM) Network now estimates that one in 54 children in the US have been identified with autism spectrum disorder (ASD; Maenner et al. 2020). Given the dramatic increase in ASD prevalence over the previous several decades, Electronic supplementary material The online version of this article (https://doi.org/10.1007/s10803-020-04746-3) contains supplementary material, which is available to authorized users. * Paige E. Cervantes [email protected] 1
Department of Child and Adolescent Psychiatry, NYU Langone Health, New York, NY, USA
2
Department of Psychiatry and Behavioral Sciences, MIND Institute, University of California, Davis, Sacramento, CA, USA
3
Tarjan Center, Jane & Terry Semel Institute for Neuroscience and Human Behavior, UCLA, Los Angeles, CA, USA
4
Department of Health Management and Policy, Dornsife School of Public Health, Drexel University, Philadelphia, PA, USA
5
Public Health Communications Consulting, LLC, Cleveland, OH, USA
considerable public and private resources have been allocated to autism research. Legislatively, the Combating Autism Act (CAA) of 2006 was the first to expand federal involvement in and funding for ASD-specific research, surveillance, assessment and treatment services, and education programs. Most recently, the Autism Collaboration, Accountability, Research, Education, and Support (CARES) Act of 2019 was reauthorized and built on the ASD-related activities that were est
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